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Alert
12 August 2025
A follow-up deployment on the NHSBSA Open Data Portal is expected to be completed by the end of
August 2025. This will address outstanding actions from the recent update and support full implementation of
the planned improvements.
Details of all fixes and enhancements will be shared in a future news article, while the initial deployment
is covered in an existing news article.
If you encounter any issues or require support, please contact us at
DataServiceSupport@nhsbsa.nhs.uk.
secondary-care-medicines-data-indicative-price
Assignee
No one
What is happening with the prescription data which comes from the Clatterbridge Cancer Centre (ODS Code REN)? I work with a small lung cancer charity and we use the SCMD data to do analysis to estimate patient numbers for our rare lung cancer. For most trusts across England the SCMD data closely matches our expectations for the number of patients. However for REN the data appears to be fairly accurate and as we would expect up until March 2021, and then they almost seem to stop reporting all their data. The drugs in question are Alectinib, Brigatinib, Crizotinib, Ceritinib and Lorlatinib (I can provide SNOMED refs if required). However a cursory inspection seems to indicate there are other SCT drugs which are also probably not being reported by REN. Is there a valid reason why this trust is not reporting accurate data?